Wednesday, August 25, 2010


Posted to face book as Update 2.9.10

Yesterday we had an appointment with the Doctor at university hospital and a follow up ultrasound. We found that in good weather it really does only take and hour to get there. So after sitting around for a while we had our follow up ultrasound and meeting with our new OB. The ultrasound continues to confirm the micochepaly. His had as grown -but not nearly as much as it needs to. His head is measuring at 21 weeks and the rest of him 26 weeks. The good news- the rest of him seems healthy. The ultrasound also continues to show the micorgnatia-the facial abnormality. There is another MRI on Monday, though I am not sure why. We have lots of upcoming appointments. My doctor in town on the 12th, the MIR on the fifteenth and a fetal echo on the 26th. Then another follow up on March 8th. On the 8th we will also meet with our genetic counselor to kind of figure out where were are at and make sure all our ducks are in row I guess.

David and I felt kind of steamrolled by the doctor at university hospital. Not that she wasn’t knowledgeable or that she didn’t care. More so that she didn’t’ really get what were we asking. David and I understand that this is a high risk pregnancy and that we need university hospital’s expertise and knowledge. We have things in mind or our labor and every because of the research we are doing but we understand that because this is unique situations we are going to have compromise. We really just want to have conversations about how to bridge the gap. David said it well last night. “The track record of obstetrics in the country isn’t good. Normal doctors, normal procedures and hospital don’t have good reputations for really taking care of women and babies. Tell me how you are abnormal. How are you going to be different to make my wife and son safer”?

How do you say to a doctor with out sounding completely belligerent, is what you are doing really what is best for us or just what is convenient for you? What it boils down to, or at least what it feels like, it’s that though this may be routine for the doctors it is not routine to us. This is not just another baby, another delivery. He is our son.

So I cry out to God who is the ultimate physician. God who not only cares deeply for Gideon but for David and I. who understands what it means to watch his child suffer, who isn’t in a hurry to see the next patients and who works beyond tests or prognosis. Who can, and will do amazing things.

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