Monday, November 29, 2010

who moved my shoes?

Today was a busy day for the Ford family.  We went to see our new pediatrician, a doctor who specializes in working with children and babies with very special medical needs. 

We spent over two hours in her office.  Most of it really talking to people.  First the physical therapist.  Who spent some time playing with Gideon and making recommendations.  She gave us some resources for follow up with an agency for the blind that might help us identify better where he is at developmentally.  She suggested physical therapy and started a referral to an early intervetion agancy.  She also gave us some exersizes to increase his chances of being mobile. 

We met with the doctor for an extended amount of time too.  She answered a lot of our questions before we could even ask them. She discussed all the different information we need and is getting us hooked up with neurosurgery and neurology in addition to recommending some testing before we see them including an updated EEG to figure out what his needs are for seizure medications.

She wasn't worried about his weight or weight loss and.  She was very breastfeeding friendly (She is a member of LLL) and recommended to keep on doing what we have been doing.  She noted that if we wanted we could amp up the calorie intake of what bottles he does take by using some formula but didn't push the idea. 

She said, her gut, that Gideon might be around for a while and it makes sense to have a goal to make "this life" the best we can make it. 

So we have a lot of tests and a lot of appointments to come, we'll take it one day at a time like we always have, but I have to confess, I've lived the last six months, really eleven months, waiting for the shoe to drop. 
 Its wonderful and terrifying all at the same time.  Change, even good change, can take some adjusting.
Today somebody moved the shoe. Maybe someday we can throw it away. 

For now, I'll be thankful for every new day I get with my little warrior.

1 comment:

  1. So glad that there was good news and good people with advice to help along the way. Fight on little Gideon - we love you!